Pain. The worst you've experienced?

apparently it feels like a giant hook is being poked through your eye and then pulled at? I wouldn't wish cluster headaches on anyone - I've seen the Youtube videos.

I always describe it as 'a little man inside my head going rampant with a pair of pliers.
It's not just the pain but the impact it has on your life. My clusters happen twice a year and each lasts about 6 weeks. During that time, when an episode occurs I am of no use to anyone (what's new?) so at work or play everything stops. People with no experience of these cluster headaches find it difficult to appreciate how much pain there is and just mark you down as a wimp.
 
I always describe it as 'a little man inside my head going rampant with a pair of pliers.
It's not just the pain but the impact it has on your life. My clusters happen twice a year and each lasts about 6 weeks. During that time, when an episode occurs I am of no use to anyone (what's new?) so at work or play everything stops. People with no experience of these cluster headaches find it difficult to appreciate how much pain there is and just mark you down as a wimp.

Do the twice yearly occurances often fall around the daylight hour changes ....ie GMT/ BST
I had read that in many cases people suffer at these times of the year more than any other...ironically my last bout fell within a week or so of the daylight hour change although i have been know to get them pretty much anytime.....generally last all day and the bouts can be 4 or 5 headaches over a fortnight period and as you say everything comes to halt......I can only begin to imagine how dreadful a 6 week period of them must be....i really do feel for you!
A medical pro did once tell me that O2 (Oxygen) increases in the blood stream ( using a bottle of 02 and mask) can help some people ...i never looked into it further but perhaps something to bring up with your GP??
 
Yes, they tended to occur Mar/Apr and Oct/Nov every year. Now thank goodness they only occur Oct/Nov so things are improving!
I too, heard about Oxygen helping in some cases, but never had it prescribed. I do have some help now though. I have Imigran Subject which is an injection that can be self administered and as long as I catch it early, within about 15 minutes the pain is gone. It makes me very angry to know that I could have had this 20 years ago, but that the cost was too high for English GPs to prescribe it. It's only since I came to Scotland that it has been given to me. Another HUGE plus for living in the Scottish Highlands. :)
Thank you Asha for your kind thoughts and I sincerely hope your own experience with this debilitating condition is short lived. Maybe these injections could help you too, if they return.
 
For physical pain, try a twisted testical. I honestly thought the pain was going to kill me. And this is from someone who has had an open fracture of the shin!
 
I have damaged nerve roots in my neck and I'm on 800 mg of morphine daily along with 900 mg of Gabapentin, have had 3 operations to remove discs and shave bone from my vertebrae but I'm in constant pain.

This was the result of surviving a fatal helo crash in 1998. I broke my back, knees, heel, split rotator cuff muscle in left shoulder. Spent nearly 5 weeks in hospital and lost 48 hours when I was semi conscious due to the pain, this was despite being on Phentanol patches, god I sound like one of those people mentioned in another thread lol!

Overall I'm fairly familiar with severe pain.

Andy
 
duggiebee said:
For physical pain, try a twisted testical. I honestly thought the pain was going to kill me. And this is from someone who has had an open fracture of the shin!

Omg a mate of mine had twisted testicles when we were at High School. He had to walk with his arms raised as if surrendering, if he lowered them the pain made him scream!!

Andy
 
For physical pain, try a twisted testical. I honestly thought the pain was going to kill me. And this is from someone who has had an open fracture of the shin!

Makes my eyes water just thinking about it. :eek:
 
Yes, they tended to occur Mar/Apr and Oct/Nov every year. Now thank goodness they only occur Oct/Nov so things are improving!
I too, heard about Oxygen helping in some cases, but never had it prescribed. I do have some help now though. I have Imigran Subject which is an injection that can be self administered and as long as I catch it early, within about 15 minutes the pain is gone. It makes me very angry to know that I could have had this 20 years ago, but that the cost was too high for English GPs to prescribe it. It's only since I came to Scotland that it has been given to me. Another HUGE plus for living in the Scottish Highlands.

Had the chronic version for nearly five years now, respite is maximum of a fortnight

Never had any problem with my GP getting any of the sumatriptan meds including the injections. Also gave me a letter so I can go into any A&E to get Oxygen

Tried most of the known preventative drugs such as Topiramate, Gabapention and Verapamil to no avail

If it gets very bad a high dose of prednisolone (60mg daily for five days) breaks them up, messes with my bonce though and get a bit of roid rage.

Sympathies to you other sufferers and hope they find a better treatment for it. Don't let it beat you and make sure you let your employer know it is classed as a disability (court case precedence says so)
 
Last edited:
As someone who has a very high pain tolerence I really feel for you guys.
Mine is that good/bad that even when I jumped off a work surface onto an upturned electric plug I didn't realise till someone pointed out the blood trail :eek:
That is of course a down side, as my doctor said I could suffer serious injury without realising :eek:
 
I had a motorbike crash a few years ago (I've had loads over the years, truth be told) which saw me hit and slide along the road at 70 (ish) mph for a good few meters. I then hit a kerb which vaulted me up in the air, hit a hedge which up-rooted, carried on flying through the air in to someones garden, hit a row of plastic bins, then a wall, then finally landed inside someones garden shed, demolishing it in the process (the roof caved in on me).....all wearing nothing but my helmet, shorts, trainers and a t-shirt!!

Luckily, I walked away from it within a minute or two, and only decided to go to the hospital hours later!!

My injury list was mainly shock (I was shaking for hours!), and the loss of a fair amount of skin/flesh.....a couple of broken bones too but nothing too serious, considering!!

Previous to this, I worked as a nightclub doorman for several years and only decided to call it a day when I'd been stabbed for the forth time.....it was a little too close to the crown jewels for my liking!!

Also, I had an accident on an engagement shoot earlier this year, which saw me fall through a bridge. The wood had completely rotted, which has left me with a nice big loose piece of bone floating around in my knee, which is currently wedged behind my knee cap!! I'm stuck with it until my wedding season slows down later in the year, so I can take the time out to have the operation I need to sort it.....eye watering pain when I kneel on it or squat!! :'(

None of the above even comes close to stubbing my toe on the corner of my bed though.....now THAT'S real pain!! :p

That actually made me laugh out really loudly!
 
For me it was without doubt what I went through with kidney stones. OMG like knives being slowly twisted into my back. Pure agony. I do recall laughing about it though when under the influence of gas and air at the hospital. But it was brutal!

Your turn.

Same as you. Remember the doctor giving me morphine based tablets and telling me not to go out after taking them.
I was single and had to keep a job going so not able to follow advice.

Turned out when I ate strawberrys, tomatoes,rubarb or spinach they formed the crystals that turned to stones.
Bloody painfull.:eek:
 
LP (spinal tap) done today.....don't care what anyone's says but 4 inches of needle pushed into your spine HURTS! Plus side the very lovely female oz Dr who did it was instantly forgiven when she smiled.....and brought me a coffee
 
2 broken legs, 2 broken ankles, waiting best part of an hour for paramedics to turn up.....

so do you still owe money to Malk the Knife and Big Lenny, then ?
 
worst single pain was probably having a dislocated shoulder put back in without aneasthetic , but for duration probably the time i fell out of a tree, landed on my chainsaw and broke 2 ribs, cracked 3 more, and tore the intercostal muscles - it felt like i was being stabbed in the chest ever time i breathed for weeks
 
I had Neuralgia?? when i was about ten It was torture I've had broken arms legs etc since then which was nothing in comparison
 
in the days of being very under weight and having a 4 hour tattoo were the needles bruised ribs and blunted out a few times from hitting a rib now and then. That hurt.
 
Back
Top