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I remember Cameron talking about the coming changes to benefits and stating "No genuinely disabled person will be worse off under our reforms".
Well I'm genuinely severely disabled (bed bound 24/7 and completely reliant on carers for those that don't know) and I now find myself over £100 per month worse off thanks to the reforms of council tax benefit & the bedroom tax.
Previously the severely disabled living in specially adapted properties where exempt from paying council tax as it was recognised that having to pay out of our benefits would impact our ability to pay for our care and also meet the increased costs we have with energy bills, special diets and aids/bedding etc.
Now thats gone out of the window and council tax benefit has gone, any help is discretionary from each council and not classed as a benefit so that there is no automatic entitlement, my council decided not to give any help to anyone on council tax and as its no longer classed as a benefit they can do as they wish.
Added to this I live in a small ground floor flat with 2 small bedrooms, I live in one, my carers and family use the other.
As I didn't qualify for overnight care, overnight care is provided by my family, namely my 75 yr old father and my niece when she can as she is a professional carer.
I applied for a discretionary payment with respect to the bedroom tax on the grounds that I needed the room for those who care for me when I need help during the night and also on the grounds that moving to the other side of town to a 1 bed property would not be feasible on several grounds.
1 - I would need to be moved there by ambulance & paramedics as I cant even sit.
2 - I would lose my GP who is fantastic at visiting and managing my condition and end up with a third rate GP who I have had in the past when I lived that side of town.
3 - I would lose my local support network of neighbours and friends including local shop keepers, I only have to pick up the phone and they will help.
4 - I would be 30mins away from my family who would no longer be able to visit as frequently as they do, they can be here in 4mins in the case of an emergency and should anything happen to my father I would not be able to see my mother at all as unlike here the new place is not on a local bus route, here my mother can get on a bus outside her house and get off at the top of my road, she can manage the short distance on her crutches.
I've just been told I wont get any help as I dont meet the criteria, ie having professional paid carers staying every night from dusk to dawn.
I pointed out my niece IS a professional carer, but apparently as I dont pay her, she doesn't count.
Also apparently only professional carers need a bed to sleep on when looking after you, family members in particular a 75yr old can sleep on the floor!
It's beyond a joke, do they not realise that this money has to come directly from the extra I have to pay each week to top up my care? thus I will have to decrease my care hours in order to pay them.
Even worse is to come apparently when we change to pip instead of DLA and universal credit.
Ps - No I dont have satellite tv/items on credit, credit card etc etc and it goes without saying that I dont go down the pub or anything lol.
Well I'm genuinely severely disabled (bed bound 24/7 and completely reliant on carers for those that don't know) and I now find myself over £100 per month worse off thanks to the reforms of council tax benefit & the bedroom tax.
Previously the severely disabled living in specially adapted properties where exempt from paying council tax as it was recognised that having to pay out of our benefits would impact our ability to pay for our care and also meet the increased costs we have with energy bills, special diets and aids/bedding etc.
Now thats gone out of the window and council tax benefit has gone, any help is discretionary from each council and not classed as a benefit so that there is no automatic entitlement, my council decided not to give any help to anyone on council tax and as its no longer classed as a benefit they can do as they wish.
Added to this I live in a small ground floor flat with 2 small bedrooms, I live in one, my carers and family use the other.
As I didn't qualify for overnight care, overnight care is provided by my family, namely my 75 yr old father and my niece when she can as she is a professional carer.
I applied for a discretionary payment with respect to the bedroom tax on the grounds that I needed the room for those who care for me when I need help during the night and also on the grounds that moving to the other side of town to a 1 bed property would not be feasible on several grounds.
1 - I would need to be moved there by ambulance & paramedics as I cant even sit.
2 - I would lose my GP who is fantastic at visiting and managing my condition and end up with a third rate GP who I have had in the past when I lived that side of town.
3 - I would lose my local support network of neighbours and friends including local shop keepers, I only have to pick up the phone and they will help.
4 - I would be 30mins away from my family who would no longer be able to visit as frequently as they do, they can be here in 4mins in the case of an emergency and should anything happen to my father I would not be able to see my mother at all as unlike here the new place is not on a local bus route, here my mother can get on a bus outside her house and get off at the top of my road, she can manage the short distance on her crutches.
I've just been told I wont get any help as I dont meet the criteria, ie having professional paid carers staying every night from dusk to dawn.
I pointed out my niece IS a professional carer, but apparently as I dont pay her, she doesn't count.
Also apparently only professional carers need a bed to sleep on when looking after you, family members in particular a 75yr old can sleep on the floor!
It's beyond a joke, do they not realise that this money has to come directly from the extra I have to pay each week to top up my care? thus I will have to decrease my care hours in order to pay them.
Even worse is to come apparently when we change to pip instead of DLA and universal credit.
Ps - No I dont have satellite tv/items on credit, credit card etc etc and it goes without saying that I dont go down the pub or anything lol.
