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- Name
- Daryl
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I have a 13 year old daughter who has Albinism (see below) which in lay-mans terms means she is an albino. She is bright, intelligent with a dry sense of humor she is also a teenager and behaves as any other teenager would (dads you know what I mean)
Albinism is a comparatively rare genetically inherited group of condition which results in a reduction or complete lack of pigment (colour) in the skin, hair and eyes of people with the condition. This can result in pale skin which burns easily in the sun, virtually white hair, very severe short-sight and photophobia (a severe sensitivity to light).
We belong to a charity called The Albinism Fellowship which is a positive and sociable volunteer-run organisation that aims to provide information, advice and support for people with albinism and their families
http://www.albinism.org.uk/index.php
Right (if you are still reading) now to the photography bit.
We went to the Albinism Fellowship conference this year (Nov2009) and in doing so we met Rick Guidotti who is/was a commercial fashion photographer (Yves Saint Laurent, Elle, Harpers Bazaar, Revlon, LOreal and Life Magazine) who founded Positive Exposure, a project that challenges stigma associated with difference by pioneering a new vision of the beauty and richness of genetic diversity.
http://www.positiveexposure.org/about.html
Rick is an American and takes photographs like a man possessed, he has so much energy its unreal, to see/hear him in action with a camera in his hands in full photographic flow was eye opening.
He has such a way about him, the way he just grabbed people and talked at them at 100 miles an hour pausing briefly to show the subject the preview on the camera screen and tell them how fantastic they were.
I was with a small group of people in a deserted function room in the hotel and he was grabbing people and standing them in an open patio door and just using the natural light, the result he was getting from the mostly shy and not so confident subjects was amazing, oh and they were loving it getting more and more confident with every shutter click.
I cant wait for the pictures to be made available as is my daughter, but in the mean time perhaps you may like to follow the links above or alternatively do a Google search for Rick Guidotti and Positive Exposure and see what you think for yourselves.
Albinism is a comparatively rare genetically inherited group of condition which results in a reduction or complete lack of pigment (colour) in the skin, hair and eyes of people with the condition. This can result in pale skin which burns easily in the sun, virtually white hair, very severe short-sight and photophobia (a severe sensitivity to light).
We belong to a charity called The Albinism Fellowship which is a positive and sociable volunteer-run organisation that aims to provide information, advice and support for people with albinism and their families
http://www.albinism.org.uk/index.php
Right (if you are still reading) now to the photography bit.
We went to the Albinism Fellowship conference this year (Nov2009) and in doing so we met Rick Guidotti who is/was a commercial fashion photographer (Yves Saint Laurent, Elle, Harpers Bazaar, Revlon, LOreal and Life Magazine) who founded Positive Exposure, a project that challenges stigma associated with difference by pioneering a new vision of the beauty and richness of genetic diversity.
http://www.positiveexposure.org/about.html
Rick is an American and takes photographs like a man possessed, he has so much energy its unreal, to see/hear him in action with a camera in his hands in full photographic flow was eye opening.
He has such a way about him, the way he just grabbed people and talked at them at 100 miles an hour pausing briefly to show the subject the preview on the camera screen and tell them how fantastic they were.
I was with a small group of people in a deserted function room in the hotel and he was grabbing people and standing them in an open patio door and just using the natural light, the result he was getting from the mostly shy and not so confident subjects was amazing, oh and they were loving it getting more and more confident with every shutter click.
I cant wait for the pictures to be made available as is my daughter, but in the mean time perhaps you may like to follow the links above or alternatively do a Google search for Rick Guidotti and Positive Exposure and see what you think for yourselves.